VICTORIA – The mother of a nine-year-old Vancouver Island girl who has an extremely rare neurodegenerative disease says she’s grateful her daughter will get her medication back.
The British Columbia government has restored funding for Charleigh Pollock for the drug Brineura, which costs about $1 million a year.
Health Minister Josie Osborne said on Thursday she believes health professionals should make decisions about care, and a letter she received from Batten disease experts in the United States detailed a “significant disagreement” over the drug.
